It’s often not an easy road finding the right supports or the right support team for a child with a disability.
Meet Jaxson, a happy go lucky five year old boy who loves to jump, run and climb and is happiest amongst his peers at his local mainstream kindergarten. Jaxson was diagnosed with ASD Level 3 (autistic spectrum disorder) when he was 2 years old, and since then has also been found to have sensory processing disorder, is non-verbal, and also has ADHD.
Jaxson’s mother, Sandra, speaks candidly about the roadblocks she and her partner have experienced the last few years with many mainstream services not meeting Jaxson’s needs.
“Being in a mainstream setting is where Jaxson is most happy however he wasn’t getting the support he needed and I felt lost and didn’t know where to turn. I heard about Myhorizon’s Early Intervention Services last year and decided to give them a call. After speaking to the team there, I finally felt like I found someone who could offer some understanding and options for the first time. I ended that call with tears of hope.” Said Sandra.
Myhorizon was able to provide a range of educational resources for Sandra and her family to learn about Jaxson’s diagnosis and possible treatments and therapies available. The Early Intervention team were then able to schedule time to observe Jaxson in his kindergarten environment and give feedback as to what best supports were needed for Jaxson in that setting.
“This was a game-changer for Jaxson and us as a family. It gave us hope and a path forward and options where we were at a point where we felt like we had no options.” Said Sandra.
Myhorizon’s Early Intervention team developed a tailored program for Jaxson which included an integrative support approach. Using a combination of therapies, Sandra quickly saw improvements and progress in Jaxson’s everyday skills.
“Jaxson is completely non-verbal but it doesn’t mean he isn’t vocal. Getting an appropriate communication pathway for Jaxson has been quite difficult, however working with the Therapists at Myhorizon has allowed Jaxson to trial a communication device where he can push buttons on a special device to speak to us, which is usually very expensive and out of reach for a lot of families so we’ve been extremely lucky. It’s been a huge thing for Jaxson as a person and the people trying to communicate with him. We are also currently trying to explore a further trial with an eye-gaze component just to see if that helps him communicate any better.” Said Sandra.
Sandra and her husband Lee, have also benefited from the MyTime Respite sessions held through Myhorizon where they’ve been able to meet and talk to other parents with similar experiences. “It’s so good just to have that support, someone to talk to, someone who knows and understands about your child’s disability. We went through a stage of being very alone and finding it very difficult to self-educate over Jaxson’s diagnosis and difficulties, and getting to meet other families. Not all kids have same disabilities and not all kids have same struggles with the same disabilities, but it’s been great meeting other families and other kids and it’s been great doing it in a supportive setting.”
Sandra has recently worked through the NDIS planning process with Myhorizon’s team and is awaiting Jaxson’s new package like many other participants, so Jaxson’s supports can continue. “I initially found the whole NDIS process confusing and overwhelming but the Early Intervention team at Myhorizon helped us through it all and made sure I had all the right information ready.
“Finding the Myhorizon Early Intervention team has been one of the main positives of our journey with Jaxson. It’s been the most helpful in a therapeutic and personal level too.” Said Sandra.
When asked what Sandra’s ultimate long-term goal is for Jaxson, she wants what any parent wants for their child,
“I’d love for things to be made more accessible in the community for Jaxson and other individuals like him. I want him to experience his educational journey with his peers. That’s where he’s happiest and thrives the most. And long-term, I want him to have the opportunity to live independently and have a job one day, whatever that may be.”
Click here to find out more about Myhorizon’s Early Intervention Services.